Tag Archives: Naa

The Autism Policy Reform Coalition’s Futile Fix – Under Construction?

Broken egg isolated on white background

By Jake Crosby

The Autism Policy Reform Coalition (APRC) is an umbrella organization of groups that support “fixing” the Combating Autism Act, now renamed the Autism CARES Act. APRC’s member organizations include SafeMinds, the National Autism Association (NAA), Talk About Curing Autism (TACA) and Generation Rescue.

APRC’s main aim specific to autism causation is the creation of an “Office of Autism Spectrum Disorder Research” at the NIH, modeled after the agency’s Office of AIDS Research. This proposal originated with SafeMinds, which appears to be leading the coalition.

Curious, I emailed APRC some questions below highlighting my concerns about its proposed “fixing.”

Hi,

I have several questions I would like for you to address regarding your coalition.

1. Why do you want an autism research office in a federal agency culpable for covering up and whitewashing autism causation, that supports the stifling of debate and also supports libelous attacks on scientists?

2. Why is one of your biggest political allies Biotechnology Industry Organization’s two-time “Legislator of the Year” Mike Enzi, who published a report calling clear-cut cases of federal scientific misconduct “not substantiated”?

3. Why do you ask for a greater “federal response” from agencies caught hiding, manipulating and misrepresenting research?

4. Why does the only IACC representative of any of your member groups never mention this malfeasance as she sits in committee meetings along side some of its worst perpetrators?

5. Why do your member organizations in your coalition to influence autism legislation include SafeMinds, which hijacked the 2012 congressional autism hearing by misrepresenting its original organizer to congressional staff?

I look forward to a timely response to my questions.

Sincerely,

Jake Crosby, MPH
Editor, Autism Investigated
www.autisminvestigated.com

I’ve received no word back, so I can only imagine how APRC could defend asking for an “Office of Autism Spectrum Disorder Research” in an agency known to cover up evidence that vaccinations are causing autism, exemplified by none other than NIH’s director of strategic planning for vaccine research, Gordon Douglas:

“Four current studies are taking place to rule out the proposed link between autism and thimerosal…In order to undo the harmful effects of research claiming to link the [measles] vaccine to an elevated risk of autism, we need to conduct and publicize additional studies to assure parents of safety.” 

Would Act Up want an Office of AIDS Research in the NIH if it were trying to cover up that HIV is causing AIDS?

Not likely.

Weeks after my email and days after the Senate delayed voting on the Autism CARES bill opposed by APRC, the APRC website was gutted and the webpage describing APRC’s proposed autism bill was scrubbed. All that remains now is a blank homepage with a logo.

APRC supported the delay on the premise of giving the public a chance to read the CARES bill and understand what it is asking for. Yet APRC’s proposed alternative is no longer available on APRC’s website.

Addendum, July 2nd, 2014: In response to Autism Investigated, APRC confirmed it is moving to a new website that is under construction yesterday on Facebook: “Contrary to this article, we are developing a more comprehensive website resulting from the many inquiries and increased interest in our platforms and ideas. We’ll post the new improved link when it’s ready. Stay Tuned!”

Addendum, July 10th, 2014: On July 6th, I commented under the above statement, asking APRC:  “Why did you scrub your old website before the new one could replace it?” I got no answer. The old APRC website autismpolicy.org now re-directs to autismpolicy.net, which is “Password Protected.”

Addendum, July 11th, 2014: The new website is now publicly available. The National Autism Association is no longer listed as a member organization of APRC.

Addendum, January 18th, 2015: …nor is Talk About Curing Autism.

Jake Crosby is editor of Autism Investigated. He is a 2011 graduate of Brandeis University with a Bachelor of Arts in both History and Health: Science, Society and Policy and a 2013 graduate of The George Washington University School of Public Health and Health Services with a Master of Public Health in Epidemiology. He currently attends the University of Texas School of Public Health where he is studying for a Ph.D. in Epidemiology.

Watch Jake Crosby’s AutismOne 2014 Talk

Props to AutismOne’s Teri Arranga for her introduction.

Originally posted on AutismOne

So often, when we think of investigating autism, we think of discovering the physiological underpinnings. But what about the sociological forces that perpetuate the autism epidemic? Politics from without? Or – surprisingly – politics from within? In this startling lecture, Jacob Crosby, MPH, discusses the obstructionist forces that have hampered progress within the autism advocacy arena.

Jake Crosby, MPH

Jake Crosby is editor of Autism Investigated. He is a 2011 graduate of Brandeis University with a bachelor’s degree in both history and health and a 2013 graduate of The George Washington University School of Public Health and Health Services with a master’s degree in epidemiology. He currently attends the University of Texas School of Public Health where he is studying for a PhD in epidemiology. For nearly five years, he was contributing editor to Age of Autism.

Originally posted at AutismOne

AutismOne is a non-profit charity organization 501(c)(3) started by a small group of parents of children with autism. Parents are and must remain the driving force of our community, the stakes are too high and the issues too sacred to delegate to outside interests. AUTISM IS A PREVENTABLE/TREATABLE BIOMEDICAL CONDITION. Autism is the result of environmental triggers. Autism is not caused by “bad” genes and the epidemic is not the result of “better” diagnosis. Children with autism suffer from gut bugs, allergies, heavy metal toxicity, mitochondrial disorders, antioxidant deficiencies, nutritional deficiencies and autoimmune diseases – all of which are treatable. THE KEY IS EDUCATION The AutismOne Conference, AutismOne Radio, AutismOne Outreach and Autism in Action initiatives educate more than 100,000 families every year about prevention, recovery, safety, and change.

Originally posted at AutismOne

 

Addendum: See AutismOne Slides

Canary Flies Over to Chili’s Boycott, Leaves a Dropping on Autism Investigated

Boycottchiliscomment

(Click to enlarge)

By Jake Crosby

Autism Investigated’s criticism of the National Autism Association (NAA) for giving “respect” to Chili’s decision to pull its fundraising was ironically attacked on a Facebook page titled “Boycott Chili’s.” The person behind the attack would reveal herself to be none other than Canary Party’s former Vice President, Ginger Taylor, who along with her organization have been an ongoing subject of criticism by Autism Investigated for hijacking the congressional hearings on autism.

Taylor posted the above-mentioned Autism Investigated piece on the group’s Facebook page, and added:

“Sad to see attacks on NAA from inside our own community. Wendy from NAA sets him straight but railing against common sense is just more fun for young Mr. Crosby, who has created nothing, helped no one, done nothing but tear others down. Sad.”

The next day, I commented:

“I find it ironic that a group that calls for a boycott of Chili’s for yanking NAA’s fundraising also endorses NAA’s statement of ‘respect’ for that decision. Tearing yourself down with such contradictory messages doesn’t make you a good judge of what constitutes as helping people.”

The entire post along with both comments beneath it disappeared very soon thereafter.

Then I discovered that right after NAA President Wendy Fournier showed up on the Facebook page and created a post thanking everyone for their support, the administrator of “Boycott Chili’s” outed herself by signing her name, “Ginger T.” in her reply to Fournier (click to enlarge):

Ginger Taylor runs Chili's Boycott

Taylor’s comment that I have “created nothing, helped no one, done nothing but tear others down” is contradicted by many comments she has made online, including some below:

“Jake Crosby has been dissecting autism research, writing about vaccine injury and exposing corruption and conflicts of interests in vaccine apologists for what, four years now?”

“Jake, your new nick name is ‘Digger.’ Cause man you can dig.”

“He has an AMAZING record of taking apart these bad faith players…”

And finally:

“Jake, if you are not getting any flack, you are not over the target.”

Apparently, I have been over the target for some time now.

Jake Crosby is editor of Autism Investigated. He is a 2011 graduate of Brandeis University with a Bachelor of Arts in both History and Health: Science, Society and Policy and a 2013 graduate of The George Washington University School of Public Health and Health Services with a Master of Public Health in Epidemiology. He currently attends the University of Texas School of Public Health where he is studying for a Ph.D. in Epidemiology.

NAA Has “Respect” for Pharma Blasting its Fundraising Efforts with Chili’s

bazookapaul

Above: Business Insider’s Paul Szoldra – the actual “journalist” who led the smear campaign for the vaccine industry against the NAA fundraising event.

By Jake Crosby

After the vaccine industry bullied Chili’s into canceling its fundraising event for the National Autism Association’s (NAA’s) Big Red Safety Box Program to prevent children with autism from wandering off and drowning, NAA put out a statement expressing “respect” for the decision:

“Because of guest feedback about these views, Chili’s has opted to cancel today’s event. We respect their decision and ask everyone to please speak words of love and kindness.”

NAA also reiterated Chili’s statement, which concluded:

“As you know, Chili’s wants to make every Guest feel special and that includes listening to feedback from their Guests about this event.”

NAA even invoked a quote from Martin Luther King:

“Darkness cannot drive out darkness; only light can do that. Hate cannot drive out hate; only love can do that.”

Somehow I don’t think the type of response from NAA was what Dr. King had in mind. So I responded on the thread underneath NAA’s Facebook post to point out the obvious:

“Chili’s obviously capitulated to a typical, orchestrated campaign by the vaccine industry, not ‘Guests’ as you say. But go ahead, pretend that’s all it was – ‘Guests’. Pharma is happy to know you respect its killing of your fundraising events, and I’m sure is feeling very encouraged to do the same again and again.”

Reportedly, NAA President Wendy Fournier told CNNMoney:

“It was obvious that the comments [Chili’s was] getting were a fight about vaccines. Everybody was all heated up and wanting to boycott. It was bullying. It was orchestrated by a small number of people who wanted to deny assistance to families that we serve through our program.”

In other words, NAA knowingly respects a decision that was based on “bullying” and deems this “small number of people who wanted to deny assistance to families that we serve through our program” Chili’s “Guests.”

Fournier knows bullying, having been called “full of shit” by the vaccine industry’s original media go-to guy Arthur Allen at the 2008 “Green Our Vaccines” rally in Washington, DC. That, however, did not stop Dan Olmsted of the NAA-sponsored Age of Autism blog from defending him:

“In the past I haven’t agreed with rally moms at the Green Our Vaccines march in D.C. booting writer Arthur Allen from covering the event…”

Yet NAA still has no problem keeping its hyperlink logo underneath Age of Autism’s “SPONSORS” list. Interestingly, the president of NAA told the Associated Press:

“It hasn’t been answered whether or not vaccines can cause autism.”

Really? 15 years ago an Epidemic Intelligence Service Officer with the CDC said he would conclude the vaccine preservative thimerosal has done “harm,” meaning a broad array of disorders that included autism. And the US Government has compensated many children like Hannah Poling who have developed autism after their vaccinations since the early 1990’s.

Yet Wendy Fournier is still not sure. So what was she even doing at the 2008 “Green Our Vaccines” rally? For that matter, what was she doing on CNN in 2011 giving a totally unprepared defense of Dr. Andrew Wakefield?

Whatever the reasons, NAA is now in full retreat as pharma advances.

Jake Crosby is editor of Autism Investigated. He is a 2011 graduate of Brandeis University with a Bachelor of Arts in both History and Health: Science, Society and Policy and a 2013 graduate of The George Washington University School of Public Health and Health Services with a Master of Public Health in Epidemiology. He currently attends the University of Texas School of Public Health where he is studying for a Ph.D. in Epidemiology.